# ACP Organ Donation Choice Registration in Donor Register - Advance Care Planning (PZP) STU3 v1.0.0

## Resource Profile: ACP Organ Donation Choice Registration in Donor Register 

 
Observation capturing whether the patient's organ donation choice is recorded in the donor register as reported by the patient. It is intended to track the administrative status of the decision rather than the clinical or legal specifics of the donation choice itself. This information is exchanged so the next caregiver knows whether the topic requires attention in future ACP conversations. Based on Observation resource. 

**Usages:**

* Examples for this Profile: [Observation/ACP-OrganDonationChoiceRegistration-2025-Pat1](Observation-ACP-OrganDonationChoiceRegistration-2025-Pat1.md), [Observation/ACP-OrganDonationChoiceRegistration-Pat1](Observation-ACP-OrganDonationChoiceRegistration-Pat1.md) and [Observation/ACP-OrganDonationChoiceRegistrationInDonorRegister-Pat2](Observation-ACP-OrganDonationChoiceRegistrationInDonorRegister-Pat2.md)

You can also check for [usages in the FHIR IG Statistics](https://packages2.fhir.org/xig/resource/iknl.fhir.stu3.pzp|current/StructureDefinition/StructureDefinition-ACP-OrganDonationChoiceRegistration.json)

### Formal Views of Profile Content

 [Description Differentials, Snapshots, and other representations](http://build.fhir.org/ig/FHIR/ig-guidance/readingIgs.html#structure-definitions). 

 

Other representations of profile: [CSV](../StructureDefinition-ACP-OrganDonationChoiceRegistration.csv), [Excel](../StructureDefinition-ACP-OrganDonationChoiceRegistration.xlsx), [Schematron](../StructureDefinition-ACP-OrganDonationChoiceRegistration.sch) 



## Resource Content

```json
{
  "resourceType" : "StructureDefinition",
  "id" : "ACP-OrganDonationChoiceRegistration",
  "url" : "https://api.iknl.nl/docs/pzp/stu3/StructureDefinition/ACP-OrganDonationChoiceRegistration",
  "version" : "1.0.0",
  "name" : "ACPOrganDonationChoiceRegistration",
  "title" : "ACP Organ Donation Choice Registration in Donor Register",
  "status" : "draft",
  "experimental" : false,
  "date" : "2026-08-11T11:10:11+02:00",
  "publisher" : "IKNL",
  "contact" : [{
    "telecom" : [{
      "system" : "url",
      "value" : "https://www.iknl.nl"
    }]
  }],
  "description" : "Observation capturing whether the patient's organ donation choice is recorded in the donor register as reported by the patient. It is intended to track the administrative status of the decision rather than the clinical or legal specifics of the donation choice itself. This information is exchanged so the next caregiver knows whether the topic requires attention in future ACP conversations. Based on Observation resource.",
  "jurisdiction" : [{
    "coding" : [{
      "system" : "http://unstats.un.org/unsd/methods/m49/m49.htm",
      "code" : "001"
    }]
  }],
  "copyright" : "Copyright and related rights waived via CC0, https://creativecommons.org/publicdomain/zero/1.0/. This does not apply to information from third parties, for example a medical terminology system. The implementer alone is responsible for identifying and obtaining any necessary licenses or authorizations to utilize third party IP in connection with the specification or otherwise.",
  "fhirVersion" : "3.0.2",
  "mapping" : [{
    "identity" : "pall-izppz-zib2017",
    "uri" : "https://decor.nictiz.nl/exist/apps/api/dataset/2.16.840.1.113883.2.4.3.11.60.117.1.1/2020-07-29T10%3A37%3A48/$view?language=nl-NL&ui=nl-NL&format=html&hidecolumns=3456gh&release=2026-08-10T10%3A11%3A40",
    "name" : "ACP zib2017 dataset"
  },
  {
    "identity" : "hcim-generalmeasurement-v3.0-2017EN",
    "uri" : "https://zibs.nl/wiki/GeneralMeasurement-v3.0(2017EN)",
    "name" : "HCIM GeneralMeasurement-v3.0(2017EN)"
  },
  {
    "identity" : "hcim-basicelements-v1.0-2017EN",
    "uri" : "https://zibs.nl/wiki/BasicElements-v1.0(2017EN)",
    "name" : "HCIM BasicElements-v1.0(2017EN)"
  },
  {
    "identity" : "hcim-outcomeofcare-v3.1-2017EN",
    "uri" : "https://zibs.nl/wiki/OutcomeOfCare-v3.1(2017EN)",
    "name" : "HCIM OutcomeOfCare-v3.1(2017EN)"
  }],
  "kind" : "resource",
  "abstract" : false,
  "type" : "Observation",
  "baseDefinition" : "http://nictiz.nl/fhir/StructureDefinition/zib-GeneralMeasurement|2.0.4",
  "derivation" : "constraint",
  "differential" : {
    "element" : [{
      "id" : "Observation",
      "path" : "Observation",
      "mapping" : [{
        "identity" : "pall-izppz-zib2017",
        "map" : "737",
        "comment" : "Keuze orgaandonatie vastgelegd in donorregister? (AlgemeneMeting)"
      }]
    },
    {
      "id" : "Observation.code",
      "path" : "Observation.code",
      "patternCodeableConcept" : {
        "coding" : [{
          "system" : "http://snomed.info/sct",
          "code" : "570801000146104"
        }]
      },
      "mapping" : [{
        "identity" : "pall-izppz-zib2017",
        "map" : "742",
        "comment" : "MetingNaam voor Keuze orgaandonatie vastgelegd in donorregister?"
      }]
    },
    {
      "id" : "Observation.subject",
      "path" : "Observation.subject",
      "type" : [{
        "code" : "Reference",
        "targetProfile" : "https://api.iknl.nl/docs/pzp/stu3/StructureDefinition/ACP-Patient|1.0.0"
      }]
    },
    {
      "id" : "Observation.context",
      "path" : "Observation.context",
      "type" : [{
        "code" : "Reference",
        "targetProfile" : "https://api.iknl.nl/docs/pzp/stu3/StructureDefinition/ACP-Encounter|1.0.0"
      }]
    },
    {
      "id" : "Observation.effective[x]",
      "path" : "Observation.effective[x]",
      "mapping" : [{
        "identity" : "pall-izppz-zib2017",
        "map" : "745",
        "comment" : "UitslagDatumTijd"
      }]
    },
    {
      "id" : "Observation.value[x]",
      "path" : "Observation.value[x]",
      "definition" : "Organ donation choice recorded in donor register.",
      "type" : [{
        "code" : "CodeableConcept"
      }],
      "binding" : {
        "strength" : "required",
        "valueSetReference" : {
          "reference" : "https://api.iknl.nl/docs/pzp/stu3/ValueSet/ACP-YesNoUnknownVS|1.0.0"
        }
      },
      "mapping" : [{
        "identity" : "pall-izppz-zib2017",
        "map" : "743",
        "comment" : "Keuze orgaandonatie in donorregister (UitslagWaarde)"
      }]
    },
    {
      "id" : "Observation.dataAbsentReason",
      "path" : "Observation.dataAbsentReason",
      "mapping" : [{
        "identity" : "pall-izppz-zib2017",
        "map" : "743",
        "comment" : "Keuze orgaandonatie in donorregister (UitslagWaarde)"
      }]
    },
    {
      "id" : "Observation.method",
      "path" : "Observation.method",
      "min" : 1,
      "patternCodeableConcept" : {
        "coding" : [{
          "system" : "http://snomed.info/sct",
          "code" : "1156040003"
        }]
      }
    }]
  }
}

```
