Information about a person that is involved in the care for a patient, but who is not the target of healthcare, nor has a formal responsibility in the care process.

Whereas the zib ContactPerson includes all (non-healthcare professional) persons that are involved in the care for a patient, FHIR distinguishes two use cases for these persons:

• The RelatedPerson resource, and therefore this profile, is used to capture information about any person that is related to the patient.
• Information about persons that should be contacted regarding the care for the patient is captured using the Patient.contact resource.

If a person is both a related person and a contact person, then some data duplication is inevitable.

A reference to a set of rules that were followed when the resource was constructed, and which must be understood when processing the content. Often, this is a reference to an implementation guide that defines the special rules along with other profiles etc.

Asserting this rule set restricts the content to be only understood by a limited set of trading partners. This inherently limits the usefulness of the data in the long term. However, the existing health eco-system is highly fractured, and not yet ready to define, collect, and exchange data in a generally computable sense. Wherever possible, implementers and/or specification writers should avoid using this element. Often, when used, the URL is a reference to an implementation guide that defines these special rules as part of it's narrative along with other profiles, value sets, etc.

May be used to represent additional information that is not part of the basic definition of the resource and that modifies the understanding of the element that contains it and/or the understanding of the containing element's descendants. Usually modifier elements provide negation or qualification. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer is allowed to define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. Applications processing a resource are required to check for modifier extensions.

Modifier extensions SHALL NOT change the meaning of any elements on Resource or DomainResource (including cannot change the meaning of modifierExtension itself).

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

Modifier extensions allow for extensions that cannot be safely ignored to be clearly distinguished from the vast majority of extensions which can be safely ignored. This promotes interoperability by eliminating the need for implementers to prohibit the presence of extensions. For further information, see the definition of modifier extensions.

Whether this related person record is in active use.

This element is labeled as a modifier because it may be used to mark that the resource was created in error.

Need to be able to mark a related person record as not to be used, such as if it was created in error.

The patient this person is related to.

We need to know which patient this RelatedPerson is related to.

The nature of the relationship between a patient and the related person.

The nature of the relationship between a patient and the related person.

We need to know the relationship with the patient since it influences the interpretation of the information attributed to this person.

Defines the role of the contact in relation to the patient.

The nature of the relationship between a patient and the related person.

We need to know the relationship with the patient since it influences the interpretation of the information attributed to this person.

When someone is or will be a legal representative, then a relationship code 24 from code system urn:oid:2.16.840.1.113883.2.4.3.11.22.472 is added.

The nature of the relationship between a patient and the related person.

We need to know the relationship with the patient since it influences the interpretation of the information attributed to this person.

Full name of the contact.

Related persons need to be identified by name, but it is uncommon to need details about multiple other names for that person.

This slice represents the person's official name information, including given names, last name and possibly the partner's last name.

This .name element accomodates the official parts of a Dutch name according to common international usage and optionally to the zib NameInformation v1.1 (2020). An official Dutch name is represented in FHIR as an ordinary international name, optionally augmented using extensions to specify how the last name is built up according to the Dutch rules if conformance to the zib is required. See the guidance on .family and on .extension:nameUsage for more information.

Systems that need to work in a Dutch context SHOULD support the extensions as specified in .given, .family and .extension:nameUsage. In addition, systems SHOULD use the core elements according to the FHIR specifications to provide compatibility outside Dutch contexts. This means that:

• If parts of the name are specified using one or more of the structured elements, the .text element SHOULD be populated with a rendered version of the full name.
• If parts of the family name are specified using the extensions in .family, the .family element SHOULD be populated with the full family name.

Note 1: The zib cannot be represented straightforward in FHIR. Especially note the guidance on .given on how to map the FirstNames and Initials concepts, and on .prefix/.suffix on how to map the Titles concept.

Note 2: This element should only contain a person's official names. The GivenName concept is represented in another .name element with .name.use = usual.

Note 3: The examples illustrate how the zib is mapped to FHIR.

Related persons need to be identified by name, but it is uncommon to need details about multiple other names for that person.

A code that represents the preferred display order of the components of this human name.

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

An Extension

Source of the definition for the extension code - a logical name or a URL.

The definition may point directly to a computable or human-readable definition of the extensibility codes, or it may be a logical URI as declared in some other specification. The definition SHALL be a URI for the Structure Definition defining the extension.

This concept indicates the last name or order of last names with which the person is to be addressed.

Use ConceptMap NaamgebruikCodelijst-to-HumanNameAssemblyOrder to translate terminology from the functional model to profile terminology in ValueSet HumanNameAssemblyOrder.

Identifies the purpose for this name.

Applications can assume that a name is current unless it explicitly says that it is temporary or old.

The use of a human name.

Allows the appropriate name for a particular context of use to be selected from among a set of names.

One of a person’s official first names or the initial if the full name is not known.

This element can be used to represent full given names or initials. extension:givenOrInitial SHALL be used on each repretition to specifiy if it's a full name (BR) or an initial (IN).

Zib compatibility

Tthis element is used to represent the FirstNames and Initials concepts of zib NameInformation, but the FHIR implementation deviates from the zib model. The zib defines these concepts as a list of official first names (as a single string) and a list of initials (as a single string), both optional. They both represent the official name(s) of a person and thus represent the same concept. In FHIR however, each first name is either a complete name or an initial, but not both. In addition, each name may be defined separately.

Therefore, the zib concepts are implemented here in the following way:

• Systems SHOULD use a .given element for each official first name that they know of (either as a full name or an initial), in order of appearance (as specified by FHIR).
• Each of these elements:
  • SHOULD be populated with the complete name if it is known, or with the initial if no more information is available.
  • As noted, it SHALL be augmented with extension:givenOrInitial.

Initials should thus not be communicated for each complete first name that is known, in contrast to what is specified by the zib. Receiving systems can recreate initials from the full names if needed.

If a system does however only have a list of official first names and a separate list of official initials, without knowing the relationship between these two, only the full names SHOULD be communicated, while an additional .name instance MAY be used to communicate the initials. It is expected that the second instance just contains the initials and no other information from the zib. Receiving systems MAY ignore the second instance.

Note 1: The GivenName concept should not be included here but in a separate .name instance where .use = usual.

Note 2: As specified by FHIR, multiple official first names MAY be combined in a single .given element (separated by spaces), as long as the .given elements can be concatenated to form the full first name representation, and the 'extension:givenOrInitial` is used to mark the element as containing either full names or the initials. This pattern is strongly discouraged as it is hard to determine if the value pertains multiple names or a single combined name containing spaces.

May be used to represent additional information that is not part of the basic definition of the resource. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension.

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

A set of codes each of which specifies a certain subcategory of the name part in addition to the main name part type.

Used to indicate additional information about the name part and how it should be used.

Noble and scientific titles. These can assist in formulating oral and formal addresing titles.

The zib concept 'titles' is mapped to elements HumanName.prefix and HumanName.suffix. Semantically this mapping is not complete: the zib uses a single concept that contains all the required information about noble and scientific titles, while FHIR captures the same information in a structured way.

Export:

Systems are expected to transform as much as possible to the FHIR datamodel and thereby to be as explicit as possible. Note that in order to mark the type of a prefix, you can use the FHIR standard extension for ISO 21090 EN Qualifiers. Examples include the use of the qualifier HON to indicate honorific prefixes and AC for academic prefixes.

If it is not possible to breakup the zib concept titles to positioned prefixes and suffixes, the prefix element is used to store all information.

Import:

Systems need to expect and be resilient for a broader range of information stored in the prefix element than stated by it's definition.

This slice represents the name information normally used to address the person.

This .name element represents the Dutch given name ("roepnaam") according to the zib NameInformation v1.1 (2020).

Note 1: This element should only contain a person's unofficial name. The official names are represented in one or more other .name elements with .name.use = official.

Note 2: The examples illustrate how the zib is mapped to FHIR.

Related persons need to be identified by name, but it is uncommon to need details about multiple other names for that person.

Identifies the purpose for this name.

Applications can assume that a name is current unless it explicitly says that it is temporary or old.

The use of a human name.

Allows the appropriate name for a particular context of use to be selected from among a set of names.

The part of a name that links to the genealogy. In some cultures (e.g. Eritrea) the family name of a son is the first name of his father.

Family Name may be decomposed into specific parts using extensions (de, nl, es related cultures).

The name normally used to address the person.

If only initials are recorded, they may be used in place of the full name parts. Initials may be separated into multiple given names but often aren't due to paractical limitations. This element is not called "first name" since given names do not always come first.

Part of the name that is acquired as a title due to academic, legal, employment or nobility status, etc. and that appears at the start of the name.

Part of the name that is acquired as a title due to academic, legal, employment or nobility status, etc. and that appears at the end of the name.

The contact’s telephone number and/or e-mail address.

The cardinality mismatch between the zib (0..1) and FHIR (0..*) is explained by the containers TelephoneNumbers (0..*) and EmailAddresses (0..*) inside the ContactInformation model. The FHIR datatype ContactPoint does not have these containers.

People have (primary) ways to contact them in some way such as phone, email.

Details for all kinds of technology mediated contact points for a person or organization, including telephone, email, etc.

Implementation of the "TelephoneNumbers" concept of zib ContactInformation.

Please note that, although the zib concepts TelecomType and NumberType are functionally equivalent to the FHIR concepts ContactPoint.system and ContactPoint.use respectively, a mismatch occurs on the concept of mobile phone numbers; the zib uses the first concept and FHIR the second. For this reason, the ValueSet on ContactPoint.system is too narrow and the zib code will need to be communicated using the ext-CodeSpecification extension.

People have (primary) ways to contact them in some way such as phone, email.

Optional Extension Element - found in all resources.

Source of the definition for the extension code - a logical name or a URL.

The definition may point directly to a computable or human-readable definition of the extensibility codes, or it may be a logical URI as declared in some other specification. The definition SHALL be a URI for the Structure Definition defining the extension.

Explanation about the telephone number and how to use it. It can be indicated, for example, that it is a department number (for healthcare professionnels) or that availability by phone is only possible during a specified part of the day.

The telecom or device type that the telephone number is connected to.

Use ConceptMap TelecomType-to-ContactInformation-TelephoneNumbersSystem to translate terminology from the functional model to profile terminology in ValueSet ContactInformation-TelephoneNumbersSystem.

Optional Extension Element - found in all resources.

Source of the definition for the extension code - a logical name or a URL.

The definition may point directly to a computable or human-readable definition of the extensibility codes, or it may be a logical URI as declared in some other specification. The definition SHALL be a URI for the Structure Definition defining the extension.

The telecom or device type that the telephone number is connected to.

The person's telephone number.

Additional text data such as phone extension numbers, or notes about use of the contact are sometimes included in the value.

Need to support legacy numbers that are not in a tightly controlled format.

NumberType indicates whether the number is a landline, temporary, work telephone number.

Applications can assume that a contact is current unless it explicitly says that it is temporary or old.

Use ConceptMap NummerSoortCodelijst-to-ContactInformation-TelephoneNumbersUse to translate terminology from the functional model to profile terminology in ValueSet ContactInformation-TelephoneNumbersUse.

Need to track the way a person uses this contact, so a user can choose which is appropriate for their purpose.

Details for all kinds of technology mediated contact points for a person or organization, including telephone, email, etc.

Implementation of the "EmailAddresses" concept of zib ContactInformation.

People have (primary) ways to contact them in some way such as phone, email.

Telecommunications form for contact point - what communications system is required to make use of the contact.

Telecommunications form for contact point.

The person's e-mail address

Additional text data such as phone extension numbers, or notes about use of the contact are sometimes included in the value.

Need to support legacy numbers that are not in a tightly controlled format.

EmailAddressType indicates whether it is a private or business e-mail address.

Applications can assume that a contact is current unless it explicitly says that it is temporary or old.

Use ConceptMap EmailSoortCodelijst-to-ContactInformation-EmailAddressesUse to translate terminology from the functional model to profile terminology in ValueSet ContactInformation-EmailAddressesUse.

Need to track the way a person uses this contact, so a user can choose which is appropriate for their purpose.

An address expressed using postal conventions (as opposed to GPS or other location definition formats). This data type may be used to convey addresses for use in delivering mail as well as for visiting locations which might not be valid for mail delivery. There are a variety of postal address formats defined around the world.

This datatype defines a common basis for expressing all addresses around the world, but adds extensions to express Dutch addresses specifically, according to the zib AddressInformation v1.1 (2020). A Dutch Address still is a proper FHIR Address, which means that systems that cannot interpret the extensions will still be able to render and work with this datatype.

To have true compatibility an implementer SHOULD use the core Address parts as intended. To have addresses work for Dutch context, the implementer SHOULD in addition use the extension elements.

Separate address parts

The first addition is that Dutch addresses make certain address parts separately communicable. These parts are required for use in true Dutch systems when dealing with Dutch addresses, but may not have value for international systems when information gets sent abroad.

Custom address types

The second addition is that the zib defines its own ValueSet for address types, which can only be partially expressed using the FHIR Address datatype and requires a mapping to multiple elements. The table below explains how the zib concepts are mapped to the various FHIR elements (see the ConceptMaps http://nictiz.nl/fhir/ConceptMap/AdresSoortCodelijst-to-AddressUse and http://nictiz.nl/fhir/ConceptMap/AdresSoortCodelijst-to-AddressType as well). The code from the zib should also be included using the extension on Address.extension:addressType.

If Address.type is both then this is to be understood as a dual purpose address (postal and physical), unless a specific postal type address is added. Systems that support importing it like this are encouraged to do so, otherwise they may need to import this as two separate addresses.

Note: FHIR core defines the AD-use extension to further specify the postal address type. However, the ValueSet used in that extension doesn't completely match the zib ValueSet. Therefore, a custom extension has been made. This doesn't preclude the use of the AD-use extension.

Need to keep track where the related person can be contacted per postal mail or visited.

Optional Extension Element - found in all resources.

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

The type of address in question, such as a home address or mailing address.

Applications can assume that an address is current unless it explicitly says that it is temporary or old.

Use ConceptMap AdresSoortCodelijst-to-AddressUse to translate terminology from the functional model to profile terminology in ValueSet AddressUse.

Allows an appropriate address to be chosen from a list of many.

The type of address in question, such as a home address or mailing address.

The definition of Address states that "address is intended to describe postal addresses, not physical locations". However, many applications track whether an address has a dual purpose of being a location that can be visited as well as being a valid delivery destination, and Postal addresses are often used as proxies for physical locations (also see the Location resource).

Use ConceptMap AdresSoortCodelijst-to-AddressType to translate terminology from the functional model to profile terminology in ValueSet AddressType.

A geographically determined area which forms part of the municipal area. For Dutch places of residence, preferably use the name from the GBA, table 33 (OID: 2.16.840.1.113883.2.4.6.14).

Municipality of residence. For Dutch municipalities, preferably use the name from the GBA, table 33 (OID: 2.16.840.1.113883.2.4.6.14).

District is sometimes known as county, but in some regions 'county' is used in place of city (municipality), so county name should be conveyed in city instead.

Postcode of the address. In Dutch addresses, preferably use the postcode from the Postcode table (OID: 2.16.840.1.113883.2.4.4.15).

When someone is or will be a legal representative, then a relationship code 24 from code system urn:oid:2.16.840.1.113883.2.4.3.11.22.472 is added.

Information about a person that is involved in the care for a patient, but who is not the target of healthcare, nor has a formal responsibility in the care process.

Whereas the zib ContactPerson includes all (non-healthcare professional) persons that are involved in the care for a patient, FHIR distinguishes two use cases for these persons:

• The RelatedPerson resource, and therefore this profile, is used to capture information about any person that is related to the patient.
• Information about persons that should be contacted regarding the care for the patient is captured using the Patient.contact resource.

If a person is both a related person and a contact person, then some data duplication is inevitable.

The logical id of the resource, as used in the URL for the resource. Once assigned, this value never changes.

The only time that a resource does not have an id is when it is being submitted to the server using a create operation.

The metadata about the resource. This is content that is maintained by the infrastructure. Changes to the content might not always be associated with version changes to the resource.

A reference to a set of rules that were followed when the resource was constructed, and which must be understood when processing the content. Often, this is a reference to an implementation guide that defines the special rules along with other profiles etc.

Asserting this rule set restricts the content to be only understood by a limited set of trading partners. This inherently limits the usefulness of the data in the long term. However, the existing health eco-system is highly fractured, and not yet ready to define, collect, and exchange data in a generally computable sense. Wherever possible, implementers and/or specification writers should avoid using this element. Often, when used, the URL is a reference to an implementation guide that defines these special rules as part of it's narrative along with other profiles, value sets, etc.

The base language in which the resource is written.

Language is provided to support indexing and accessibility (typically, services such as text to speech use the language tag). The html language tag in the narrative applies to the narrative. The language tag on the resource may be used to specify the language of other presentations generated from the data in the resource. Not all the content has to be in the base language. The Resource.language should not be assumed to apply to the narrative automatically. If a language is specified, it should it also be specified on the div element in the html (see rules in HTML5 for information about the relationship between xml:lang and the html lang attribute).

A human language.

A human-readable narrative that contains a summary of the resource and can be used to represent the content of the resource to a human. The narrative need not encode all the structured data, but is required to contain sufficient detail to make it "clinically safe" for a human to just read the narrative. Resource definitions may define what content should be represented in the narrative to ensure clinical safety.

Contained resources do not have narrative. Resources that are not contained SHOULD have a narrative. In some cases, a resource may only have text with little or no additional discrete data (as long as all minOccurs=1 elements are satisfied). This may be necessary for data from legacy systems where information is captured as a "text blob" or where text is additionally entered raw or narrated and encoded information is added later.

These resources do not have an independent existence apart from the resource that contains them - they cannot be identified independently, and nor can they have their own independent transaction scope.

This should never be done when the content can be identified properly, as once identification is lost, it is extremely difficult (and context dependent) to restore it again. Contained resources may have profiles and tags In their meta elements, but SHALL NOT have security labels.

May be used to represent additional information that is not part of the basic definition of the resource. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension.

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

May be used to represent additional information that is not part of the basic definition of the resource and that modifies the understanding of the element that contains it and/or the understanding of the containing element's descendants. Usually modifier elements provide negation or qualification. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer is allowed to define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. Applications processing a resource are required to check for modifier extensions.

Modifier extensions SHALL NOT change the meaning of any elements on Resource or DomainResource (including cannot change the meaning of modifierExtension itself).

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

Modifier extensions allow for extensions that cannot be safely ignored to be clearly distinguished from the vast majority of extensions which can be safely ignored. This promotes interoperability by eliminating the need for implementers to prohibit the presence of extensions. For further information, see the definition of modifier extensions.

Identifier for a person within a particular scope.

People are known by a variety of ids. Some institutions maintain several, and most collect identifiers for exchange with other organizations concerning the patient. Examples are national person identifier and local identifier.

Whether this related person record is in active use.

This element is labeled as a modifier because it may be used to mark that the resource was created in error.

Need to be able to mark a related person record as not to be used, such as if it was created in error.

The patient this person is related to.

We need to know which patient this RelatedPerson is related to.

The nature of the relationship between a patient and the related person.

The nature of the relationship between a patient and the related person.

We need to know the relationship with the patient since it influences the interpretation of the information attributed to this person.

Defines the role of the contact in relation to the patient.

The nature of the relationship between a patient and the related person.

We need to know the relationship with the patient since it influences the interpretation of the information attributed to this person.

When someone is or will be a legal representative, then a relationship code 24 from code system urn:oid:2.16.840.1.113883.2.4.3.11.22.472 is added.

The nature of the relationship between a patient and the related person.

We need to know the relationship with the patient since it influences the interpretation of the information attributed to this person.

Full name of the contact.

Related persons need to be identified by name, but it is uncommon to need details about multiple other names for that person.

This slice represents the person's official name information, including given names, last name and possibly the partner's last name.

This .name element accomodates the official parts of a Dutch name according to common international usage and optionally to the zib NameInformation v1.1 (2020). An official Dutch name is represented in FHIR as an ordinary international name, optionally augmented using extensions to specify how the last name is built up according to the Dutch rules if conformance to the zib is required. See the guidance on .family and on .extension:nameUsage for more information.

Systems that need to work in a Dutch context SHOULD support the extensions as specified in .given, .family and .extension:nameUsage. In addition, systems SHOULD use the core elements according to the FHIR specifications to provide compatibility outside Dutch contexts. This means that:

• If parts of the name are specified using one or more of the structured elements, the .text element SHOULD be populated with a rendered version of the full name.
• If parts of the family name are specified using the extensions in .family, the .family element SHOULD be populated with the full family name.

Note 1: The zib cannot be represented straightforward in FHIR. Especially note the guidance on .given on how to map the FirstNames and Initials concepts, and on .prefix/.suffix on how to map the Titles concept.

Note 2: This element should only contain a person's official names. The GivenName concept is represented in another .name element with .name.use = usual.

Note 3: The examples illustrate how the zib is mapped to FHIR.

Related persons need to be identified by name, but it is uncommon to need details about multiple other names for that person.

Unique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.

May be used to represent additional information that is not part of the basic definition of the element. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension.

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

A code that represents the preferred display order of the components of this human name.

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

Unique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.

An Extension

Source of the definition for the extension code - a logical name or a URL.

The definition may point directly to a computable or human-readable definition of the extensibility codes, or it may be a logical URI as declared in some other specification. The definition SHALL be a URI for the Structure Definition defining the extension.

This concept indicates the last name or order of last names with which the person is to be addressed.

Use ConceptMap NaamgebruikCodelijst-to-HumanNameAssemblyOrder to translate terminology from the functional model to profile terminology in ValueSet HumanNameAssemblyOrder.

Identifies the purpose for this name.

Applications can assume that a name is current unless it explicitly says that it is temporary or old.

The use of a human name.

Allows the appropriate name for a particular context of use to be selected from among a set of names.

Specifies the entire name as it should be displayed e.g. on an application UI. This may be provided instead of or as well as the specific parts.

A representation of the full name, including given names and the family name.

When implementing zib NameInformation, this representation should include the FirstNames or Initials and the family name constructed according to the NameUsage concept.

A renderable, unencoded form.

The part of a name that links to the genealogy. In some cultures (e.g. Eritrea) the family name of a son is the first name of his father.

When implementing zib NameInformation, this representation should be constrcuted from the Prefix, LastName, PartnerPrefix and/or PartnerLastName concepts according to the NameUsage concept.

unique id for the element within a resource (for internal references)

May be used to represent additional information that is not part of the basic definition of the resource. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension.

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

The prefix portion (e.g. voorvoegsel) of the family name that is derived from the person's own surname, as distinguished from any portion that is derived from the surname of the person's partner or spouse.

An example of a voorvoegsel is the "van" in "Ludwig van Beethoven". Since the voorvoegsel doesn't sort completely alphabetically, it is reasonable to specify it as a separate sub-component.

Unique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.

An Extension

Source of the definition for the extension code - a logical name or a URL.

The definition may point directly to a computable or human-readable definition of the extensibility codes, or it may be a logical URI as declared in some other specification. The definition SHALL be a URI for the Structure Definition defining the extension.

Prefix to the person’s own last name.

The portion of the family name that is derived from the person's own surname, as distinguished from any portion that is derived from the surname of the person's partner or spouse.

If the person's surname has legally changed to become (or incorporate) the surname of the person's partner or spouse, this is the person's surname immediately prior to such change. Often this is the person's "maiden name".

Unique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.

An Extension

Source of the definition for the extension code - a logical name or a URL.

The definition may point directly to a computable or human-readable definition of the extensibility codes, or it may be a logical URI as declared in some other specification. The definition SHALL be a URI for the Structure Definition defining the extension.

The person’s official last name

The prefix portion (e.g. voorvoegsel) of the family name that is derived from the person's partner's surname, as distinguished from any portion that is derived from the surname of the person's own.

An example of a voorvoegsel is the "van" in "Ludwig van Beethoven". Since the voorvoegsel doesn't sort completely alphabetically, it is reasonable to identify it as a separate sub-component.

Unique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.

An Extension

Source of the definition for the extension code - a logical name or a URL.

The definition may point directly to a computable or human-readable definition of the extensibility codes, or it may be a logical URI as declared in some other specification. The definition SHALL be a URI for the Structure Definition defining the extension.

Prefix to the partner’s last name.

The portion of the family name that is derived from the person's partner's surname, as distinguished from any portion that is derived from the surname of the person's own name.

If the person's surname has legally changed to become (or incorporate) the surname of the person's partner or spouse, this is the person's surname immediately prior to such change. Often this is the person's "maiden name".

Unique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.

An Extension

Source of the definition for the extension code - a logical name or a URL.

The definition may point directly to a computable or human-readable definition of the extensibility codes, or it may be a logical URI as declared in some other specification. The definition SHALL be a URI for the Structure Definition defining the extension.

Partner’s official last name.

The actual value

One of a person’s official first names or the initial if the full name is not known.

This element can be used to represent full given names or initials. extension:givenOrInitial SHALL be used on each repretition to specifiy if it's a full name (BR) or an initial (IN).

Zib compatibility

Tthis element is used to represent the FirstNames and Initials concepts of zib NameInformation, but the FHIR implementation deviates from the zib model. The zib defines these concepts as a list of official first names (as a single string) and a list of initials (as a single string), both optional. They both represent the official name(s) of a person and thus represent the same concept. In FHIR however, each first name is either a complete name or an initial, but not both. In addition, each name may be defined separately.

Therefore, the zib concepts are implemented here in the following way:

• Systems SHOULD use a .given element for each official first name that they know of (either as a full name or an initial), in order of appearance (as specified by FHIR).
• Each of these elements:
  • SHOULD be populated with the complete name if it is known, or with the initial if no more information is available.
  • As noted, it SHALL be augmented with extension:givenOrInitial.

Initials should thus not be communicated for each complete first name that is known, in contrast to what is specified by the zib. Receiving systems can recreate initials from the full names if needed.

If a system does however only have a list of official first names and a separate list of official initials, without knowing the relationship between these two, only the full names SHOULD be communicated, while an additional .name instance MAY be used to communicate the initials. It is expected that the second instance just contains the initials and no other information from the zib. Receiving systems MAY ignore the second instance.

Note 1: The GivenName concept should not be included here but in a separate .name instance where .use = usual.

Note 2: As specified by FHIR, multiple official first names MAY be combined in a single .given element (separated by spaces), as long as the .given elements can be concatenated to form the full first name representation, and the 'extension:givenOrInitial` is used to mark the element as containing either full names or the initials. This pattern is strongly discouraged as it is hard to determine if the value pertains multiple names or a single combined name containing spaces.

unique id for the element within a resource (for internal references)

May be used to represent additional information that is not part of the basic definition of the resource. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension.

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

A set of codes each of which specifies a certain subcategory of the name part in addition to the main name part type.

Used to indicate additional information about the name part and how it should be used.

The actual value

Noble and scientific titles. These can assist in formulating oral and formal addresing titles.

The zib concept 'titles' is mapped to elements HumanName.prefix and HumanName.suffix. Semantically this mapping is not complete: the zib uses a single concept that contains all the required information about noble and scientific titles, while FHIR captures the same information in a structured way.

Export:

Systems are expected to transform as much as possible to the FHIR datamodel and thereby to be as explicit as possible. Note that in order to mark the type of a prefix, you can use the FHIR standard extension for ISO 21090 EN Qualifiers. Examples include the use of the qualifier HON to indicate honorific prefixes and AC for academic prefixes.

If it is not possible to breakup the zib concept titles to positioned prefixes and suffixes, the prefix element is used to store all information.

Import:

Systems need to expect and be resilient for a broader range of information stored in the prefix element than stated by it's definition.

Noble and scientific titles. These can assist in formulating oral and formal addresing titles.

The zib concept 'titles' is mapped to elements HumanName.prefix and HumanName.suffix. Semantically this mapping is not complete: the zib uses a single concept that contains all the required information about noble and scientific titles, while FHIR captures the same information in a structured way.

Export:

Systems are expected to transform as much as possible to the FHIR datamodel and thereby to be as explicit as possible. Note that in order to mark the type of a prefix, you can use the FHIR standard extension for ISO 21090 EN Qualifiers. Examples include the use of the qualifier HON to indicate honorific prefixes and AC for academic prefixes.

If it is not possible to breakup the zib concept titles to positioned prefixes and suffixes, the prefix element is used to store all information.

Import:

Systems need to expect and be resilient for a broader range of information stored in the prefix element than stated by it's definition.

Indicates the period of time when this name was valid for the named person.

Allows names to be placed in historical context.

This slice represents the name information normally used to address the person.

This .name element represents the Dutch given name ("roepnaam") according to the zib NameInformation v1.1 (2020).

Note 1: This element should only contain a person's unofficial name. The official names are represented in one or more other .name elements with .name.use = official.

Note 2: The examples illustrate how the zib is mapped to FHIR.

Related persons need to be identified by name, but it is uncommon to need details about multiple other names for that person.

Unique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.

May be used to represent additional information that is not part of the basic definition of the element. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension.

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

Identifies the purpose for this name.

Applications can assume that a name is current unless it explicitly says that it is temporary or old.

The use of a human name.

Allows the appropriate name for a particular context of use to be selected from among a set of names.

Specifies the entire name as it should be displayed e.g. on an application UI. This may be provided instead of or as well as the specific parts.

Can provide both a text representation and parts. Applications updating a name SHALL ensure that when both text and parts are present, no content is included in the text that isn't found in a part.

A renderable, unencoded form.

The part of a name that links to the genealogy. In some cultures (e.g. Eritrea) the family name of a son is the first name of his father.

Family Name may be decomposed into specific parts using extensions (de, nl, es related cultures).

The name normally used to address the person.

If only initials are recorded, they may be used in place of the full name parts. Initials may be separated into multiple given names but often aren't due to paractical limitations. This element is not called "first name" since given names do not always come first.

Part of the name that is acquired as a title due to academic, legal, employment or nobility status, etc. and that appears at the start of the name.

Part of the name that is acquired as a title due to academic, legal, employment or nobility status, etc. and that appears at the end of the name.

Indicates the period of time when this name was valid for the named person.

Allows names to be placed in historical context.

The contact’s telephone number and/or e-mail address.

The cardinality mismatch between the zib (0..1) and FHIR (0..*) is explained by the containers TelephoneNumbers (0..*) and EmailAddresses (0..*) inside the ContactInformation model. The FHIR datatype ContactPoint does not have these containers.

People have (primary) ways to contact them in some way such as phone, email.

Details for all kinds of technology mediated contact points for a person or organization, including telephone, email, etc.

Implementation of the "TelephoneNumbers" concept of zib ContactInformation.

Please note that, although the zib concepts TelecomType and NumberType are functionally equivalent to the FHIR concepts ContactPoint.system and ContactPoint.use respectively, a mismatch occurs on the concept of mobile phone numbers; the zib uses the first concept and FHIR the second. For this reason, the ValueSet on ContactPoint.system is too narrow and the zib code will need to be communicated using the ext-CodeSpecification extension.

People have (primary) ways to contact them in some way such as phone, email.

Unique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.

May be used to represent additional information that is not part of the basic definition of the element. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension.

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

Optional Extension Element - found in all resources.

Unique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.

May be used to represent additional information that is not part of the basic definition of the element. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension.

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.